Translation and Cultural Adaptation of the <i>Go Wish Game</i>: Thinking About Personal Values to Promote Advance Care Planning.

Go Wish advance care planning cross-cultural adaptation end-of-life care oncology qualitative research method

Journal

Journal of palliative medicine
ISSN: 1557-7740
Titre abrégé: J Palliat Med
Pays: United States
ID NLM: 9808462

Informations de publication

Date de publication:
10 2022
Historique:
pubmed: 22 7 2022
medline: 6 10 2022
entrez: 21 7 2022
Statut: ppublish

Résumé

<b><i>Background:</i></b> The Go Wish Game (GWG) is a practical tool developed to ease advance care planning (ACP) conversations regarding end-of-life (EOL) issues. The game consists of a guide and 35 cards to help persons think about their personal values and priorities in the context of care and to discuss and share those concerns with families and health care professionals (HPs). <b><i>Objectives:</i></b> To promote ACP conversations in the Italian context, we developed an Italian version of the GWG by linguistic translation and cultural adaptation. <b><i>Design:</i></b> Cross-cultural adaptation process developed by Beaton et al. <b><i>Measurements:</i></b> We started with a back-and-forth translation to guarantee linguistic appropriateness. A prefinal Italian version was developed and then qualitatively evaluated by two focus groups (FGs) to assess content validity and cultural appropriateness. Participants' suggestions were discussed by the research groups and included in the final Italian version. <b><i>Data analysis:</i></b> The FGs' transcripts were analyzed by thematic analysis. <b><i>Sample:</i></b> One FG included HPs potentially involved in ACP, the second FG involved representative from local patient associations (RLPAs) with chronic, degenerative, and potentially terminal disease. Participants were purposefully selected. The two FGs involved eight HPs and five RLPAs, respectively. <b><i>Results:</i></b> Fewer explicit statements concerning EOL choices and a broader emphasis on the role of HPs in this discussion characterized the prefinal version. Our analysis identified three themes and five subthemes: (1) <i>improving translation</i>: linguistic redefinition and practical clarification; (2) <i>how to play the GWG</i>: needs and suggestions; and (3) <i>more than a game</i>. <b><i>Conclusion:</i></b> The Italian version developed in this study presents several cultural peculiarities. The rigorous translation and cultural adaptation process applied can enrich the existing literature by spreading a practical tool for initiating ACP in other languages and cultures. Further studies are needed to evaluate this tool's effectiveness in supporting ACP and training HPs to promote the ACP process.

Identifiants

pubmed: 35862002
doi: 10.1089/jpm.2022.0083
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

1540-1550

Auteurs

Marta Perin (M)

Bioethics Unit, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.
PhD Program in Clinical and Experimental Medicine, University of Modena and Reggio Emilia, Modena, Italy.

Silvia Tanzi (S)

Palliative Care Unit, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.

Carlo Botrugno (C)

Research Unit on Everyday Bioethics and Ethics of Science, Department of Legal Sciences, University of Florence, Florence, Italy.

Chelsi Craddock (C)

Independent Contractor, Belluno, Italy.

Elisabeth Menkin (E)

Geriatrician and Hospice Physician, Retired.

Carlo Peruselli (C)

Palliative Care Physician, former President of SICP Italian Society of Palliative Care, Biella, Italy.

Ludovica De Panfilis (L)

Bioethics Unit, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.

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