Prenatal phenotyping: A community effort to enhance the Human Phenotype Ontology.

GA4GH Phenopacket HPO fetal pathology human phenotype ontology prenatal diagnosis prenatal phenotyping

Journal

American journal of medical genetics. Part C, Seminars in medical genetics
ISSN: 1552-4876
Titre abrégé: Am J Med Genet C Semin Med Genet
Pays: United States
ID NLM: 101235745

Informations de publication

Date de publication:
06 2022
Historique:
received: 14 04 2022
accepted: 01 07 2022
pubmed: 26 7 2022
medline: 21 10 2022
entrez: 25 7 2022
Statut: ppublish

Résumé

Technological advances in both genome sequencing and prenatal imaging are increasing our ability to accurately recognize and diagnose Mendelian conditions prenatally. Phenotype-driven early genetic diagnosis of fetal genetic disease can help to strategize treatment options and clinical preventive measures during the perinatal period, to plan in utero therapies, and to inform parental decision-making. Fetal phenotypes of genetic diseases are often unique and at present are not well understood; more comprehensive knowledge about prenatal phenotypes and computational resources have an enormous potential to improve diagnostics and translational research. The Human Phenotype Ontology (HPO) has been widely used to support diagnostics and translational research in human genetics. To better support prenatal usage, the HPO consortium conducted a series of workshops with a group of domain experts in a variety of medical specialties, diagnostic techniques, as well as diseases and phenotypes related to prenatal medicine, including perinatal pathology, musculoskeletal anomalies, neurology, medical genetics, hydrops fetalis, craniofacial malformations, cardiology, neonatal-perinatal medicine, fetal medicine, placental pathology, prenatal imaging, and bioinformatics. We expanded the representation of prenatal phenotypes in HPO by adding 95 new phenotype terms under the Abnormality of prenatal development or birth (HP:0001197) grouping term, and revised definitions, synonyms, and disease annotations for most of the 152 terms that existed before the beginning of this effort. The expansion of prenatal phenotypes in HPO will support phenotype-driven prenatal exome and genome sequencing for precision genetic diagnostics of rare diseases to support prenatal care.

Identifiants

pubmed: 35872606
doi: 10.1002/ajmg.c.31989
pmc: PMC9588534
mid: NIHMS1821345
doi:

Types de publication

Journal Article Research Support, N.I.H., Extramural Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

231-242

Subventions

Organisme : NICHD NIH HHS
ID : K12 HD001262
Pays : United States
Organisme : NICHD NIH HHS
ID : R01 HD107190
Pays : United States
Organisme : NIH HHS
ID : R24 OD011883
Pays : United States
Organisme : NHGRI NIH HHS
ID : U24 HG011449
Pays : United States
Organisme : British Heart Foundation
ID : FS/18/79/33932
Pays : United Kingdom
Organisme : NIGMS NIH HHS
ID : T32 GM007748
Pays : United States

Informations de copyright

© 2022 The Authors. American Journal of Medical Genetics Part C: Seminars in Medical Genetics published by Wiley Periodicals LLC.

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Auteurs

Ferdinand Dhombres (F)

Sorbonne University, GRC26, INSERM, Limics, Armand Trousseau Hospital, Fetal Medicine Department, APHP, Paris, France.

Patricia Morgan (P)

American College of Medical Genetics and Genomics, Newborn Screening Translational Research Network, Bethesda, Maryland, USA.

Bimal P Chaudhari (BP)

Institute for Genomic Medicine, Nationwide Children's Hospital, Columbus, Ohio, USA.

Isabel Filges (I)

University Hospital Basel and University of Basel, Medical Genetics, Basel, Switzerland.

Teresa N Sparks (TN)

Department of Obstetrics, Gynecology, & Reproductive Sciences, University of California, San Francisco, San Francisco, California, USA.

Pablo Lapunzina (P)

CIBERER and Hospital Universitario La Paz, INGEMM-Institute of Medical and Molecular Genetics, Madrid, Spain.

Tony Roscioli (T)

Neuroscience Research Australia (NeuRA), University of New South Wales, Sydney, New South Wales, Australia.

Umber Agarwal (U)

Department of Maternal and Fetal Medicine, Liverpool Women's NHS Foundation Trust, Liverpool, UK.

Shagun Aggarwal (S)

Department of Medical Genetics, Nizam's Institute of Medical Sciences, Hyderabad, Telangana, India.

Claire Beneteau (C)

Service de Génétique Médicale, UF 9321 de Fœtopathologie et Génétique, CHU de Nantes, Nantes, France.

Pilar Cacheiro (P)

William Harvey Research Institute, Queen Mary University of London, London, UK.

Leigh C Carmody (LC)

Department of Genomic Medicine, The Jackson Laboratory, Farmington, Connecticut, USA.

Sophie Collardeau-Frachon (S)

Department of Pathology, University Hospital of Lyon and Soffoet, Lyon, France.

Esther A Dempsey (EA)

St George's University of London, Molecular and Clinical Sciences Research Institute, London, UK.

Andreas Dufke (A)

University of Tübingen, Institute of Medical Genetics and Applied Genomics, Tübingen, Germany.

Michael Henri Duyzend (MH)

Department of Pediatrics, Boston Children's Hospital, Boston/Cambridge, Massachusetts, USA.

Mirna El Ghosh (M)

Sorbonne University, INSERM, LIMICS, Paris, France.

Jessica L Giordano (JL)

Department of Obstetrics and Gynecology, Columbia University Irving Medical Center, New York, New York, USA.

Ragnhild Glad (R)

Department of Obstetrics and Gynecology, University Hospital of North Norway, Tromsø, Norway.

Ieva Grinfelde (I)

Department of Medical Genetics and Prenatal diagnosis, Children's University Hospital, Riga, Latvia.

Dominic G Iliescu (DG)

Department of Obstetrics and Gynecology, University of Medicine and Pharmacy Craiova, Craiova, Dolj, Romania.

Markus S Ladewig (MS)

Department of Ophthalmology, Klinikum Saarbrücken, Saarbrücken, Saarland, Germany.

Monica C Munoz-Torres (MC)

Department of Biochemistry and Molecular Genetics, University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA.

Marzia Pollazzon (M)

Azienda USL-IRCCS di Reggio Emilia, Medical Genetics Unit, Reggio Emilia, Italy.

Francesca Clementina Radio (FC)

Genetics and Rare Diseases Research Division, IRCCS, Ospedale Pediatrico Bambino Gesù, Rome, Italy.

Carlota Rodo (C)

Vall d'Hebron Hospital Campus, Maternal & Fetal Medicine, Barcelona, Spain.

Raquel Gouveia Silva (RG)

Hospital Santa Maria, Serviço de Genética, Departamento de Pediatria, Hospital de Santa Maria, Centro Hospitalar Universitário Lisboa Norte, Centro Académico de Medicina de Lisboa, Lisboa, Portugal.

Damian Smedley (D)

William Harvey Research Institute, Queen Mary University of London, London, UK.

Jagadish Chandrabose Sundaramurthi (JC)

Department of Genomic Medicine, The Jackson Laboratory, Farmington, Connecticut, USA.

Sabrina Toro (S)

Department of Biochemistry and Molecular Genetics, University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA.

Irene Valenzuela (I)

Hospital Vall d'Hebron, Clinical and Molecular Genetics Area, Barcelona, Spain.

Nicole A Vasilevsky (NA)

Department of Biochemistry and Molecular Genetics, University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA.

Ronald J Wapner (RJ)

Department of Obstetrics and Gynecology, Columbia University Irving Medical Center, New York, New York, USA.

Roni Zemet (R)

Department of Molecular and Human Genetics, Baylor College of Medicine, Houston, Texas, USA.

Melissa A Haendel (MA)

Department of Biochemistry and Molecular Genetics, University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA.

Peter N Robinson (PN)

Department of Genomic Medicine, The Jackson Laboratory, Farmington, Connecticut, USA.

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