Rare Disease Education Outside of the Classroom and Clinic: Evaluation of the RARE Compassion Program for Undergraduate Medical Students.
David R. Cox Scholarship
RARE Compassion Program
medical education
program evaluation
rare diseases
Journal
Genes
ISSN: 2073-4425
Titre abrégé: Genes (Basel)
Pays: Switzerland
ID NLM: 101551097
Informations de publication
Date de publication:
23 Sep 2022
23 Sep 2022
Historique:
received:
12
08
2022
revised:
02
09
2022
accepted:
15
09
2022
entrez:
27
10
2022
pubmed:
28
10
2022
medline:
29
10
2022
Statut:
epublish
Résumé
Launched in 2014, the RARE Compassion Program is the first international educational program to pair medical students with rare disease patients in order to enhance exposure to and comfort with rare diseases. As part of ongoing quality improvement, this study retrospectively reviewed four years of participant registration data to conduct a program evaluation of the RARE Compassion Program between 2014-2018. During the study period, there were 334 student participants, representing 67.3% of Association of American Medical Colleges (AAMC) member medical schools, and 5389 rare disease volunteers. Despite not requiring in-person interaction, 90.64% of student-volunteer interactions were in-person, while only 5.89% and 3.46% were by video messaging or email correspondence, respectively (
Identifiants
pubmed: 36292592
pii: genes13101707
doi: 10.3390/genes13101707
pmc: PMC9601568
pii:
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Références
Genet Med. 2015 May;17(5):386-90
pubmed: 25232852
Genet Med. 2021 Jun;23(6):1151-1157
pubmed: 33580224
JAMA Intern Med. 2016 Oct 1;176(10):1561-1563
pubmed: 27533329
Genet Med. 2003 Jul-Aug;5(4):328-31
pubmed: 12865762
Am J Med Genet C Semin Med Genet. 2006 Nov 15;142C(4):294-303
pubmed: 17024669
J Genet Couns. 2018 Aug 21;:
pubmed: 30128673
Orphanet J Rare Dis. 2021 Sep 28;16(1):400
pubmed: 34583737
BMJ. 2005 Aug 13;331(7513):387-91
pubmed: 16096306
Med Teach. 2020 Apr;42(4):380-392
pubmed: 31852313
Am J Hum Genet. 2014 Jun 5;94(6):809-17
pubmed: 24906018
Arch Dis Child. 2008 Dec;93(12):1071-4
pubmed: 18684747
Orphanet J Rare Dis. 2021 Apr 13;16(1):171
pubmed: 33849615
Nat Rev Genet. 2018 May;19(5):253-268
pubmed: 29398702
Med Teach. 2002 Nov;24(6):652-4
pubmed: 12623464
Am J Med Genet A. 2021 Nov;185(11):3259-3265
pubmed: 34169650
Acad Med. 2007 May;82(5):441-5
pubmed: 17457062
Educ Health (Abingdon). 2004 Mar;17(1):42-52
pubmed: 15203473
J R Soc Med. 2005 Mar;98(3):91-5
pubmed: 15738549
Orphanet J Rare Dis. 2013 Feb 11;8:22
pubmed: 23398775
Trends Genet. 2019 Nov;35(11):852-867
pubmed: 31623871
Med Teach. 2006 Feb;28(1):3-18
pubmed: 16627313
Genet Med. 2015 Nov;17(11):927-34
pubmed: 25674779
Med Teach. 2006 Aug;28(5):479-82
pubmed: 16973466
Nat Rev Drug Discov. 2020 Feb;19(2):77-78
pubmed: 32020066
Eur J Gen Pract. 2009;15(1):4-10
pubmed: 19229784
Med Educ. 2002 Jun;36(6):540-2
pubmed: 12047668
WMJ. 2017 Jun;116(2):69-74
pubmed: 29323820