Patient views on asthma diagnosis and how a clinical decision support system could help: A qualitative study.
GPs and asthma nurses
asthma diagnosis
clinical decision support system (cdss)
patient perspectives
primary care
Journal
Health expectations : an international journal of public participation in health care and health policy
ISSN: 1369-7625
Titre abrégé: Health Expect
Pays: England
ID NLM: 9815926
Informations de publication
Date de publication:
02 2023
02 2023
Historique:
revised:
22
09
2022
received:
06
07
2022
accepted:
23
10
2022
pubmed:
13
11
2022
medline:
24
1
2023
entrez:
12
11
2022
Statut:
ppublish
Résumé
Making a diagnosis of asthma can be challenging for clinicians and patients. A clinical decision support system (CDSS) for use in primary care including a patient-facing mode, could change how information is shared between patients and healthcare professionals and improve the diagnostic process. Participants diagnosed with asthma within the last 5 years were recruited from general practices across four UK regions. In-depth interviews were used to explore patient experiences relating to their asthma diagnosis and to understand how a CDSS could be used to improve the diagnostic process for patients. Interviews were audio recorded, transcribed verbatim and analysed using a thematic approach. Seventeen participants (12 female) undertook interviews, including 14 individuals and 3 parents of children with asthma. Being diagnosed with asthma was generally considered an uncertain process. Participants felt a lack of consultation time and poor communication affected their understanding of asthma and what to expect. Had the nature of asthma and the steps required to make a diagnosis been explained more clearly, patients felt their understanding and engagement in asthma self-management could have been improved. Participants considered that a CDSS could provide resources to support the diagnostic process, prompt dialogue, aid understanding and support shared decision-making. Undergoing an asthma diagnosis was uncertain for patients if their ideas and concerns were not addressed by clinicians and were influenced by a lack of consultation time and limitations in communication. An asthma diagnosis CDSS could provide structure and an interface to prompt dialogue, provide visuals about asthma to aid understanding and encourage patient involvement. Prespecified semistructured interview topic guides (young person and adult versions) were developed by the research team and piloted with members of the Asthma UK Centre for Applied Research Patient and Public Involvement (PPI) group. Findings were regularly discussed within the research group and with PPI colleagues to aid the interpretation of data.
Identifiants
pubmed: 36370457
doi: 10.1111/hex.13657
pmc: PMC9854294
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
307-317Subventions
Organisme : Chief Scientist Office
ID : CAF/17/01
Pays : United Kingdom
Informations de copyright
© 2022 The Authors. Health Expectations published by John Wiley & Sons Ltd.
Références
BMJ. 2015 Feb 10;350:g7624
pubmed: 25670178
Pulm Ther. 2019 Dec;5(2):97-102
pubmed: 32026405
Wellcome Open Res. 2020 Mar 24;5:50
pubmed: 32724862
Patient Educ Couns. 2017 Jan;100(1):14-17
pubmed: 27423179
Health Expect. 2016 Jun;19(3):602-16
pubmed: 25523361
BMJ. 2012 Jan 27;344:e256
pubmed: 22286508
J Gen Intern Med. 2012 Oct;27(10):1361-7
pubmed: 22618581
Int J Qual Health Care. 2007 Dec;19(6):349-57
pubmed: 17872937
Cochrane Database Syst Rev. 2017 Oct 03;10:CD012330
pubmed: 28972652
Lancet. 2018 Jan 27;391(10118):350-400
pubmed: 28911920
Br J Gen Pract. 2017 Nov;67(664):494-495
pubmed: 29074677
BMJ. 2000 Oct 7;321(7265):867-71
pubmed: 11021866
Health Expect. 2006 Dec;9(4):307-20
pubmed: 17083558
BMJ. 2008 Aug 07;337:a949
pubmed: 18687730
Rev Assoc Med Bras (1992). 2014 Nov-Dec;60(6):599-612
pubmed: 25650863
Patient Educ Couns. 2008 Dec;73(3):407-12
pubmed: 18845414
Health Aff (Millwood). 2013 Feb;32(2):276-84
pubmed: 23381520
Eur Respir J. 2019 Nov 14;54(5):
pubmed: 31481605
Health Expect. 2023 Feb;26(1):307-317
pubmed: 36370457
Br J Gen Pract. 2016 Mar;66(644):e152-7
pubmed: 26917656
Hum Resour Health. 2018 Aug 13;16(1):38
pubmed: 30103754
PLoS Med. 2007 Aug;4(8):e233
pubmed: 17683195
NPJ Prim Care Respir Med. 2014 May 20;24:14005
pubmed: 24841952
BMJ Open. 2020 Apr 20;10(4):e034559
pubmed: 32317260
Patient Educ Couns. 2014 Sep;96(3):281-6
pubmed: 25034637
BMJ. 2014 May 14;348:g3178
pubmed: 25134115
Int J Chron Obstruct Pulmon Dis. 2021 Aug 13;16:2327-2336
pubmed: 34413641
BMJ. 2021 Sep 30;374:n2061
pubmed: 34593508
Health Expect. 2006 Dec;9(4):321-32
pubmed: 17083559
JAMA. 2017 Jan 17;317(3):269-279
pubmed: 28114551
NPJ Prim Care Respir Med. 2019 Jul 17;29(1):27
pubmed: 31316068
BMC Med. 2016 Aug 29;14(1):113
pubmed: 27568881