Elevated oxysterol and N-palmitoyl-O-phosphocholineserine levels in congenital disorders of glycosylation.

ATP6AP1 N-palmitoyl-O-phosphocholineserine (PPCS) Niemann-pick type C (NPC) bile acids congenital disorders of glycosylation (CDG) oxysterols

Journal

Journal of inherited metabolic disease
ISSN: 1573-2665
Titre abrégé: J Inherit Metab Dis
Pays: United States
ID NLM: 7910918

Informations de publication

Date de publication:
03 2023
Historique:
revised: 19 01 2023
received: 16 12 2022
accepted: 23 01 2023
pubmed: 1 2 2023
medline: 15 3 2023
entrez: 31 1 2023
Statut: ppublish

Résumé

Congenital disorders of glycosylation (CDG) and Niemann-Pick type C (NPC) disease are inborn errors of metabolism that can both present with infantile-onset severe liver disease and other multisystemic manifestations. Plasma bile acid and N-palmitoyl-O-phosphocholineserine (PPCS) are screening biomarkers with proposed improved sensitivity and specificity for NPC. We report an infant with ATP6AP1-CDG who presented with cholestatic liver failure and elevated plasma oxysterols and bile acid, mimicking NPC clinically and biochemically. On further investigation, PPCS, but not the bile acid derivative N-(3β,5α,6β-trihydroxy-cholan-24-oyl) glycine (TCG), were elevated in plasma samples from individuals with ATP6AP1-, ALG1-, ALG8-, and PMM2-CDG. These findings highlight the importance of keeping CDG within the diagnostic differential when evaluating children with early onset severe liver disease and elevated bile acid or PPCS to prevent delayed diagnosis and treatment.

Identifiants

pubmed: 36719165
doi: 10.1002/jimd.12595
pmc: PMC10023375
mid: NIHMS1872629
doi:

Substances chimiques

Oxysterols 0
Bile Acids and Salts 0
Hydrolases EC 3.-
ATP6AP1 protein, human 0
Vacuolar Proton-Translocating ATPases EC 3.6.1.-

Types de publication

Journal Article Research Support, N.I.H., Extramural Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

326-334

Subventions

Organisme : NIDDK NIH HHS
ID : R01DK099551
Pays : United States
Organisme : Intramural NIH HHS
ID : ZIA HD008989
Pays : United States
Organisme : NCATS NIH HHS
ID : UL1 TR000448
Pays : United States
Organisme : NIDDK NIH HHS
ID : P30 DK020579
Pays : United States
Organisme : NIDDK NIH HHS
ID : R01 DK099551
Pays : United States
Organisme : NCATS NIH HHS
ID : UL1 TR002345
Pays : United States

Informations de copyright

© 2023 SSIEM. This article has been contributed to by U.S. Government employees and their work is in the public domain in the USA.

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Auteurs

An N Dang Do (AN)

Office of the Clinical Director, NICHD, NIH, Bethesda, Maryland, USA.

Irene J Chang (IJ)

Division of Genetic Medicine, Department of Pediatrics, University of Washington, Seattle, Washington, USA.

Xutian Jiang (X)

Department of Medicine, Washington University School of Medicine, Saint Louis, Missouri, USA.

Lynne A Wolfe (LA)

Undiagnosed Diseases Program, Common Fund, National Institutes of Health, Bethesda, Maryland, USA.

Bobby G Ng (BG)

Human Genetics Program, Sanford Children's Health Research Center, Sanford Burnham Prebys Medical Discovery Institute, La Jolla, California, USA.

Christina Lam (C)

Division of Genetic Medicine, Department of Pediatrics, University of Washington, Seattle, Washington, USA.
Center for Integrative Brain Research, Seattle Children's Research Institute, Seattle, Washington, USA.

Rhonda E Schnur (RE)

Clinical Genomics Program, GeneDx, Gaithersburg, Maryland, USA.

Katrina Allis (K)

Clinical Genomics Program, GeneDx, Gaithersburg, Maryland, USA.

Hana Hansikova (H)

Department of Pediatrics and Inherited Metabolic Disorders, Charles University and General University Hospital in Prague, Prague, Czech Republic.

Nina Ondruskova (N)

Department of Pediatrics and Inherited Metabolic Disorders, Charles University and General University Hospital in Prague, Prague, Czech Republic.

Shawn D O'Connor (SD)

Department of Pediatrics, Washington University School of Medicine in St. Louis, Saint Louis, Missouri, USA.

Amarilis Sanchez-Valle (A)

Division of Genetics and Metabolism, University of South Florida, Tampa, Florida, USA.

Arve Vollo (A)

Department of Paediatrics, Sykehuset Ostfold HF, Fredrikstad, Norway.

Raymond Y Wang (RY)

Division of Metabolic Disorders, Children's Hospital of Orange County, Orange County, California, USA.
Department of Pediatrics, University of California-Irvine School of Medicine, Irvine, California, USA.

Zoe Wolfenson (Z)

Undiagnosed Diseases Program, Common Fund, National Institutes of Health, Bethesda, Maryland, USA.

John Perreault (J)

Office of the Clinical Director, NICHD, NIH, Bethesda, Maryland, USA.

Daniel S Ory (DS)

Department of Medicine, Washington University School of Medicine, Saint Louis, Missouri, USA.

Hudson H Freeze (HH)

Human Genetics Program, Sanford Children's Health Research Center, Sanford Burnham Prebys Medical Discovery Institute, La Jolla, California, USA.

J Lawrence Merritt (JL)

Division of Genetic Medicine, Department of Pediatrics, University of Washington, Seattle, Washington, USA.

Forbes D Porter (FD)

Section on Molecular Dysmorphology, NICHD, NIH, Bethesda, Maryland, USA.

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Classifications MeSH