Only one beer can be mortal: a case report of two sisters with cardiac arrest due to a homozygous mutation in PPA2 gene.


Journal

European journal of pediatrics
ISSN: 1432-1076
Titre abrégé: Eur J Pediatr
Pays: Germany
ID NLM: 7603873

Informations de publication

Date de publication:
Aug 2023
Historique:
received: 31 03 2023
accepted: 19 05 2023
revised: 31 03 2023
medline: 28 8 2023
pubmed: 3 6 2023
entrez: 3 6 2023
Statut: ppublish

Résumé

We report the long way to the correct diagnosis in two teenage sisters who developed a cardiac arrest after consuming minimal amounts of alcohol. The older girl dramatically survived two cardiac arrests at the age of 14 and 15 years. She underwent an extensive examination that revealed isolated cardiac abnormalities including fibrosis, dilated cardiomyopathy and inflammation. The younger girl also had a cardiac arrest at the age of 15 and died suddenly after consuming 1-2 beers, 3 years after her sister´s first incident. Autopsy of the heart revealed acute myocarditis without structural alterations. Multigene panel analysis (not including PPA2) showed SCN5A and CACNA1D variants in both sisters and their healthy mother. Six years later duo exome allowed the diagnosis of an autosomal recessive PPA2-related mitochondriopathy. We discuss the molecular results and clinical picture of our patients compared to other PPA2-related cases. We highlight the diagnostic contribution of multigene panels and exome analysis. The genetic diagnosis is important for medical care and for everyday life, specifically because alcohol intake can result in cardiac arrest and should be strictly avoided.   Conclusion: Duo exome sequencing clarified the diagnosis of PPA2-related mitochondriopathy in two sisters with isolated cardiac features and sudden cardiac arrest triggered by minimal amounts of alcohol. What is Known: • Multigene-Panel or exome analysis is a valuable tool to identify genetic causes of hereditary cardiac arrhythmias. • Variants of unknown significance can lead to misinterpretation. PPA2-related mitochondriopathy is a very rare autosomal recessive condition that is normally fatal in infancy. What is New: • Duo exome analysis in two teeenage sisters with cardiac arrest revealed a homozygous mild PPA2 mutation as the underlying pathology restricted to the heart muscle.

Identifiants

pubmed: 37269378
doi: 10.1007/s00431-023-05034-9
pii: 10.1007/s00431-023-05034-9
pmc: PMC10460352
doi:

Substances chimiques

PPA2 protein, human EC 3.6.1.1
Mitochondrial Proteins 0
Inorganic Pyrophosphatase EC 3.6.1.1

Types de publication

Case Reports Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

3785-3788

Informations de copyright

© 2023. The Author(s).

Références

Wilde AAM, Semsarian C, Márquez MF et al (2022) European Heart Rhythm Association (EHRA)/Heart Rhythm Society (HRS)/Asia Pacific Heart Rhythm Society (APHRS)/Latin American Heart Rhythm Society (LAHRS) expert consensus statement on the state of genetic testing for cardiac diseases. Heart Rhythm 19(7):e1–e60. https://doi.org/10.1016/j.hrthm.2022.03.1225
doi: 10.1016/j.hrthm.2022.03.1225 pubmed: 35390533
Kennedy H, Haack TB, Hartill V et al (2016) Sudden cardiac death due to deficiency of the mitochondrial inorganic pyrophosphatase PPA2. Am J Hum Genet 99(3):674–682. https://doi.org/10.1016/j.ajhg.2016.06.027
doi: 10.1016/j.ajhg.2016.06.027 pubmed: 27523597 pmcid: 5011043
Guimier A, Gordon CT, Godard F et al (2016) Biallelic PPA2 mutations cause sudden unexpected cardiac arrest in infancy. Am J Hum Genet 99(3):666–673. https://doi.org/10.1016/j.ajhg.2016.06.021
doi: 10.1016/j.ajhg.2016.06.021 pubmed: 27523598 pmcid: 5010643
Guimier A, Achleitner MT, Moreau de Bellaing A (2021) PPA2-associated sudden cardiac death: extending the clinical and allelic spectrum in 20 new families. Genet Med 23(12):2415–2425.  https://doi.org/10.1038/s41436-021-01296-6
Phoon CKL, Halvorsen M, Goldstein DB et al (2020) Sudden unexpected death in asymptomatic infants due to PPA2 variants. Mol Genet Genomic Med 8(1):e1008.  https://doi.org/10.1002/mgg3.1008
Lundin M, Baltscheffsky H, Ronne H (1991) Yeast PPA2 gene encodes a mitochondrial inorganic pyrophosphatase that is essential for mitochondrial function. J Biol Chem 266(19):12168–12172
doi: 10.1016/S0021-9258(18)98875-7 pubmed: 1648084

Auteurs

Héctor Hugo Manzanilla-Romero (HH)

Institute of Human Genetics, Medical University of Innsbruck, Innsbruck, Austria.

Elisabeth Schermer (E)

Pediatrics III (Cardiopulmonary Unit), Medical University of Innsbruck, Innsbruck, Austria.

Agnes Mayr (A)

Clinic of Radiology, Medical University of Innsbruck, Innsbruck, Austria.

Sabine Rudnik-Schöneborn (S)

Institute of Human Genetics, Medical University of Innsbruck, Innsbruck, Austria. sabine.rudnik@i-med.ac.at.

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Classifications MeSH