Exploring Audio Recording in Terminally Ill Patients Receiving Hospice Care: "Stories for Life Charity" Model.
Journal
Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association
ISSN: 1539-0705
Titre abrégé: J Hosp Palliat Nurs
Pays: United States
ID NLM: 100887419
Informations de publication
Date de publication:
01 10 2023
01 10 2023
Historique:
medline:
12
9
2023
pubmed:
22
6
2023
entrez:
22
6
2023
Statut:
ppublish
Résumé
Stories for Life is a UK charity that provides a free and confidential service for terminally ill patients to audio record their "life story." Patients are given a copy of the recording and, if they wish, can then pass a copy on to their family/friends. This study explored how a group of terminally ill patients, receiving hospice care, experienced the process of making a voice recording of their biographies. Interviews were conducted with 5 terminally ill patients and 1 family member. Study participants found that talking to a trained volunteer provided a neutral, nonjudgmental interviewer. Patients reported a feeling of catharsis while telling their story as well as being able to reflect on significant life events. However, it was challenging to convey difficult emotions while also being mindful of protecting family who may listen to the recording. Although there was some uncertainty about how the recording would be perceived by listeners, leaving a voice-recorded life account was felt to be beneficial for immediate family members, as well as maintaining a meaningful connection with future generations. Overall, recording an audio biography in terminal illness can allow patients a space for reflection and a meaningful connection with their families.
Identifiants
pubmed: 37347958
doi: 10.1097/NJH.0000000000000958
pii: 00129191-990000000-00080
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
271-276Informations de copyright
Copyright © 2023 by The Hospice and Palliative Nurses Association. All rights reserved.
Déclaration de conflit d'intérêts
The authors have no conflicts of interest to disclose.
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