Adolescent Access to Clinicians' Notes: Adolescent, Parent, and Clinician Perspectives.
Journal
The Journal of adolescent health : official publication of the Society for Adolescent Medicine
ISSN: 1879-1972
Titre abrégé: J Adolesc Health
Pays: United States
ID NLM: 9102136
Informations de publication
Date de publication:
01 2024
01 2024
Historique:
received:
16
03
2023
revised:
02
08
2023
accepted:
04
08
2023
pmc-release:
01
01
2025
medline:
18
12
2023
pubmed:
13
10
2023
entrez:
13
10
2023
Statut:
ppublish
Résumé
In 2021, federal guidelines mandated that health-care organizations share clinicians' notes with patients to increase information transparency. While findings indicate advantages for adult patients, less is known about note-sharing from the viewpoint of adolescents. This study aims to identify adolescent, parent, and clinician perspectives on the anticipated benefits and concerns of giving adolescents access to clinicians' notes and strategies to support note-sharing in this population. We conducted six focus groups with adolescents, parents, and clinicians at a children's hospital from May to October 2021. A semistructured facilitator guide captured participant perspectives of note-sharing benefits, concerns, and strategies. Two researchers independently coded and analyzed transcript data using thematic analysis; a third researcher reconciled discrepancies. 38 stakeholders (17 adolescents, 10 parents, and 11 clinicians) described four benefits, three concerns, and four implementation strategies regarding adolescent note-sharing. Potential benefits included adolescents using notes to remember and reinforce the visit, gaining knowledge about their health, strengthening the adolescent-clinician relationship, and increasing agency in health care decisions. Concerns included notes leading to a breach in confidentiality, causing negative emotions, and becoming less useful for clinicians. Strategies included making note-sharing more secure, optimizing note layout and content, setting clear expectations, and having a portion of the note for clinician use only. Stakeholders suggest multiple strategies to optimize the implementation of note-sharing to support adolescent patients, parents, and clinicians as hospitals work to comply with federal regulations. These strategies may reinforce the potential benefits and mitigate the challenges of sharing notes with adolescent patients.
Identifiants
pubmed: 37831050
pii: S1054-139X(23)00418-4
doi: 10.1016/j.jadohealth.2023.08.008
pmc: PMC10842681
mid: NIHMS1943790
pii:
doi:
Types de publication
Journal Article
Research Support, U.S. Gov't, P.H.S.
Langues
eng
Sous-ensembles de citation
IM
Pagination
155-160Subventions
Organisme : AHRQ HHS
ID : K08 HS027214
Pays : United States
Organisme : AHRQ HHS
ID : R21 HS027894
Pays : United States
Informations de copyright
Copyright © 2023 Society for Adolescent Health and Medicine. Published by Elsevier Inc. All rights reserved.
Références
Qual Health Res. 2023 Feb;33(3):220-235
pubmed: 36655804
J Am Med Inform Assoc. 2003 Mar-Apr;10(2):129-38
pubmed: 12595402
Pediatrics. 2018 Oct;142(4):
pubmed: 30228169
Ann Intern Med. 2012 Oct 2;157(7):461-70
pubmed: 23027317
J Am Med Inform Assoc. 2008 Nov-Dec;15(6):737-43
pubmed: 18755989
Ann Intern Med. 2010 Jul 20;153(2):121-5
pubmed: 20643992
JAMA Netw Open. 2020 Mar 2;3(3):e201753
pubmed: 32219406
J Biomed Inform. 2019 Jul;95:103208
pubmed: 31078660
Acad Pediatr. 2021 Mar;21(2):259-264
pubmed: 33259951
Appl Clin Inform. 2021 Jan;12(1):76-81
pubmed: 33567464
J Adolesc Health. 2004 Aug;35(2):160-7
pubmed: 15298005
J Hosp Med. 2013 Jul;8(7):414-7
pubmed: 23813756
J Adolesc Health. 2021 Feb;68(2):426-428
pubmed: 33541602
J Biomed Inform. 2009 Apr;42(2):377-81
pubmed: 18929686
Hosp Pediatr. 2021 May;11(5):503-508
pubmed: 33795371
Pediatrics. 2022 Jun 1;149(6):
pubmed: 35531640
AMIA Annu Symp Proc. 2014 Nov 14;2014:1884-93
pubmed: 25954461
J Med Internet Res. 2019 May 06;21(5):e13876
pubmed: 31066717
AMIA Annu Symp Proc. 2018 Apr 16;2017:800-809
pubmed: 29854146
J Adolesc Health. 2001 Sep;29(3):156-9
pubmed: 11524213
Curr Probl Pediatr Adolesc Health Care. 2021 Nov;51(11):101102
pubmed: 34794891
Glob Qual Nurs Res. 2016 Mar 14;3:2333393616630466
pubmed: 28462326
Am J Med Qual. 2017 Jan/Feb;32(1):58-65
pubmed: 26453323
J Adolesc Health. 2014 Apr;54(4):487-90
pubmed: 24656534
Pediatrics. 2018 Jun;141(6):
pubmed: 29776979
Pediatrics. 2021 Mar;147(3):
pubmed: 33293349
Future Healthc J. 2021 Nov;8(3):e585-e592
pubmed: 34888446
J Pediatr. 2019 Dec;215:264-266
pubmed: 31377044
Pediatrics. 2023 Jan 1;151(1):
pubmed: 36450655