Job Retention by People With Disabilities: A Qualitative Study of the Perspectives of People With Multiple Sclerosis.


Journal

La Medicina del lavoro
ISSN: 0025-7818
Titre abrégé: Med Lav
Pays: Italy
ID NLM: 0401176

Informations de publication

Date de publication:
21 Jun 2024
Historique:
received: 16 04 2024
accepted: 27 05 2024
medline: 26 6 2024
pubmed: 26 6 2024
entrez: 26 6 2024
Statut: epublish

Résumé

Multiple sclerosis (MS), because of its early age at onset, greatly impacts the working lives of those affected by it in ways linked to different factors, both professional and personal. It has been observed that only a small percentage (20-40%) of workers with MS retain their jobs after the diagnosis. When identifying factors determining job retention or loss in this setting, it is essential to consider the direct perspectives of people with MS (PwMS). A qualitative study, based on the conduction of two focus groups, was conducted to explore the personal experiences of PwMS who work. The results show that there are numerous factors, both positive and negative, that can influence these people's ability to retain their jobs. The climate established in the workplace and the relationship between workers with MS and their colleagues were fundamentally important aspects, as was knowledge of the disease at the level of public opinion. Managing work is a complex undertaking for people with a disabling condition like MS. There needs to be greater awareness of the employment rights of PwMS. Improving these knowledge-based aspects could undoubtedly improve the quality of the working lives of PwM.

Sections du résumé

BACKGROUND BACKGROUND
Multiple sclerosis (MS), because of its early age at onset, greatly impacts the working lives of those affected by it in ways linked to different factors, both professional and personal. It has been observed that only a small percentage (20-40%) of workers with MS retain their jobs after the diagnosis. When identifying factors determining job retention or loss in this setting, it is essential to consider the direct perspectives of people with MS (PwMS).
METHODS METHODS
A qualitative study, based on the conduction of two focus groups, was conducted to explore the personal experiences of PwMS who work.
RESULTS RESULTS
The results show that there are numerous factors, both positive and negative, that can influence these people's ability to retain their jobs. The climate established in the workplace and the relationship between workers with MS and their colleagues were fundamentally important aspects, as was knowledge of the disease at the level of public opinion.
CONCLUSIONS CONCLUSIONS
Managing work is a complex undertaking for people with a disabling condition like MS. There needs to be greater awareness of the employment rights of PwMS. Improving these knowledge-based aspects could undoubtedly improve the quality of the working lives of PwM.

Identifiants

pubmed: 38922837
doi: 10.23749/mdl.v115i3.15947
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

e2024018

Auteurs

Michela Ponzio (M)

Italian Multiple Sclerosis Foundation.

Elena Pignattelli (E)

Italian Multiple Sclerosis Foundation.

Anna Verri (A)

Italian Multiple Sclerosis Foundation.

Erica Grange (E)

Italian Multiple Sclerosis Foundation.

Benedetta Persechino (B)

Italian Workers' Compensation Authority (INAIL).

Bruno Kusznir Vitturi (BK)

University of Genoa.

Paolo Bandiera (P)

Italian Multiple Sclerosis Association.

Tommaso Manacorda (T)

Italian Multiple Sclerosis Association.

Matilde Inglese (M)

University of Genoa.

Paolo Durando (P)

University of Genoa.

Mario Alberto Battaglia (MA)

University of Siena.

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