In-Home Intravenous Dexmedetomidine Infusion for Treatment of Dystonia: A Pediatric Case Report.


Journal

A&A practice
ISSN: 2575-3126
Titre abrégé: A A Pract
Pays: United States
ID NLM: 101714112

Informations de publication

Date de publication:
01 Sep 2024
Historique:
medline: 23 9 2024
pubmed: 23 9 2024
entrez: 23 9 2024
Statut: epublish

Résumé

The off-label use of an intravenous dexmedetomidine infusion is an option for refractory symptoms in pediatric palliative care with a few published cases of in-home use, most limited to end-of-life care. After an intrathecal baclofen pump malfunction with meningitis and medication withdrawal, a 17-year-old adolescent with quadriparetic cerebral palsy and paroxysmal autonomic instability experienced relief of refractory pain and dystonia with an in-home intravenous dexmedetomidine infusion. His interdisciplinary care team collaborated to establish safety measures and adjust his home medication regimen to further improve quality of life well before his end of life.

Identifiants

pubmed: 39311454
doi: 10.1213/XAA.0000000000001851
pii: 02054229-202409000-00009
doi:

Substances chimiques

Dexmedetomidine 67VB76HONO
Baclofen H789N3FKE8

Types de publication

Case Reports Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

e01851

Informations de copyright

Copyright © 2024 International Anesthesia Research Society.

Déclaration de conflit d'intérêts

The authors declare no conflicts of interest.

Références

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Auteurs

Gwendolyn J Richner (GJ)

From the Haslinger Family Pediatric Palliative Care Center, Akron Children's Hospital, Akron, Ohio.
Rebecca D. Considine Research Institute, Akron Children's Hospital, Akron, Ohio.

Stephanie S Allen (SS)

From the Haslinger Family Pediatric Palliative Care Center, Akron Children's Hospital, Akron, Ohio.

Lindsay M Adair (LM)

Home Care Pharmacy, Akron Children's Hospital, Akron, Ohio.

Daniel H Grossoehme (DH)

From the Haslinger Family Pediatric Palliative Care Center, Akron Children's Hospital, Akron, Ohio.
Rebecca D. Considine Research Institute, Akron Children's Hospital, Akron, Ohio.

Catherine A Kelly-Langen (CA)

From the Haslinger Family Pediatric Palliative Care Center, Akron Children's Hospital, Akron, Ohio.

Wendy J McNair (WJ)

From the Haslinger Family Pediatric Palliative Care Center, Akron Children's Hospital, Akron, Ohio.

Madelyne L Williams (ML)

From the Haslinger Family Pediatric Palliative Care Center, Akron Children's Hospital, Akron, Ohio.

Sarah Friebert (S)

From the Haslinger Family Pediatric Palliative Care Center, Akron Children's Hospital, Akron, Ohio.
Rebecca D. Considine Research Institute, Akron Children's Hospital, Akron, Ohio.

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