Addressing possible problems with patients' expectations, plans and decisions for the future: One strategy used by experienced clinicians in advance care planning conversations.


Journal

Patient education and counseling
ISSN: 1873-5134
Titre abrégé: Patient Educ Couns
Pays: Ireland
ID NLM: 8406280

Informations de publication

Date de publication:
04 2019
Historique:
received: 30 04 2018
revised: 04 11 2018
accepted: 09 11 2018
pubmed: 12 12 2018
medline: 10 9 2019
entrez: 12 12 2018
Statut: ppublish

Résumé

Giving terminally ill people opportunities to participate in advance care planning involves tensions between: endorsing and supporting patients' expectations, plans and decisions, and addressing how realistic these are. The latter risks exerting undue pressure to change plans; undermining autonomy; jeopardising therapeutic relationships. Our objective is to describe how experienced hospice doctors raise potential/actual problems with patients' expectations, plans or decisions. Conversation analysis of video-recorded consultations between five UK hospice consultants, 37 patients and their companions. Eleven episodes involving five doctors were found. In all of these we identified a 'Hypothetical Scenario Sequence' where doctors raise a hypothetical future scenario wherein current plans/expectations turn out to be problematic, then engage patients in discussing what could be done about this. We describe features of this sequence and how it can circumvent the risks of addressing problems with patients' expectations and plans. Our research breaks new ground, showing that by treating expectations, plans and decisions as potentially not actually problematic, practitioners can recognise and support patients' preferences whilst preparing them for possible difficulties and inevitable uncertainties. Where professionals judge it appropriate to raise problems about patients' preferences, plans and decisions, this sequence can manage the associated risks.

Identifiants

pubmed: 30528873
pii: S0738-3991(18)30999-6
doi: 10.1016/j.pec.2018.11.008
pii:
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Pagination

670-679

Informations de copyright

Copyright © 2019 The Authors. Published by Elsevier B.V. All rights reserved.

Auteurs

Victoria Land (V)

Loughborough University, UK. Electronic address: v.land@lboro.ac.uk.

Ruth Parry (R)

Loughborough University, UK.

Marco Pino (M)

Loughborough University, UK.

Laura Jenkins (L)

Loughborough University, UK.

Luke Feathers (L)

LOROS Hospice Care for Leicestershire and Rutland, and Medicine University Hospitals Leicester, UK.

Christina Faull (C)

LOROS Hospice Care for Leicestershire and Rutland, and Medicine University Hospitals Leicester, UK.

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