Deleterious de novo variants of X-linked ZC4H2 in females cause a variable phenotype with neurogenic arthrogryposis multiplex congenita.


Journal

Human mutation
ISSN: 1098-1004
Titre abrégé: Hum Mutat
Pays: United States
ID NLM: 9215429

Informations de publication

Date de publication:
12 2019
Historique:
received: 09 02 2019
revised: 30 05 2019
accepted: 10 06 2019
pubmed: 18 6 2019
medline: 6 5 2020
entrez: 18 6 2019
Statut: ppublish

Résumé

Pathogenic variants in the X-linked gene ZC4H2, which encodes a zinc-finger protein, cause an infrequently described syndromic form of arthrogryposis multiplex congenita (AMC) with central and peripheral nervous system involvement. We present genetic and detailed phenotypic information on 23 newly identified families and simplex cases that include 19 affected females from 18 families and 14 affected males from nine families. Of note, the 15 females with deleterious de novo ZC4H2 variants presented with phenotypes ranging from mild to severe, and their clinical features overlapped with those seen in affected males. By contrast, of the nine carrier females with inherited ZC4H2 missense variants that were deleterious in affected male relatives, four were symptomatic. We also compared clinical phenotypes with previously published cases of both sexes and provide an overview on 48 males and 57 females from 42 families. The spectrum of ZC4H2 defects comprises novel and recurrent mostly inherited missense variants in affected males, and de novo splicing, frameshift, nonsense, and partial ZC4H2 deletions in affected females. Pathogenicity of two newly identified missense variants was further supported by studies in zebrafish. We propose ZC4H2 as a good candidate for early genetic testing of males and females with a clinical suspicion of fetal hypo-/akinesia and/or (neurogenic) AMC.

Identifiants

pubmed: 31206972
doi: 10.1002/humu.23841
pmc: PMC6874899
mid: NIHMS1036426
doi:

Substances chimiques

Codon, Nonsense 0
Intracellular Signaling Peptides and Proteins 0
Nuclear Proteins 0
ZC4H2 protein, human 0

Types de publication

Journal Article Research Support, N.I.H., Extramural Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

2270-2285

Subventions

Organisme : NHGRI NIH HHS
ID : UM1 HG008900
Pays : United States
Organisme : Wellcome and the Department of Health, and the Wellcome Sanger Institute
ID : WT098051
Pays : International
Organisme : NHLBI NIH HHS
ID : X01HL132377
Pays : United States
Organisme : NICHD NIH HHS
ID : U54 HD090255
Pays : United States
Organisme : Department of Health
ID : RP-2016-07-011
Pays : United Kingdom
Organisme : Health Innovation Challenge Fund
ID : HICF-1009-003
Pays : International
Organisme : NEI NIH HHS
ID : R01EY027421
Pays : United States
Organisme : NEI NIH HHS
ID : R01 EY027421
Pays : United States
Organisme : Nederlandse Organisatie voor Wetenschappelijk Onderzoek
ID : OND1312421
Pays : International
Organisme : Wellcome Trust
Pays : United Kingdom

Informations de copyright

© 2019 Wiley Periodicals, Inc.

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Auteurs

Suzanna G M Frints (SGM)

Department of Clinical Genetics, Maastricht University Medical Center+, azM, Maastricht, The Netherlands.
Department of Genetics and Cell Biology, Faculty of Health Medicine Life Sciences, Maastricht University Medical Center+, Maastricht University, Maastricht, The Netherlands.

Friederike Hennig (F)

Research Group Development and Disease, Max Planck Institute for Molecular Genetics, Berlin, Germany.

Roberto Colombo (R)

Catholic University of the Sacred Heart, Rome, Italy.
Center for the Study of Rare Inherited Diseases (CeSMER), Niguarda Ca' Granda Metropolitan Hospital, Milan, Italy.

Sebastien Jacquemont (S)

Service de Génétique Médicale, CHUV, Lausanne, Switzerland.

Paulien Terhal (P)

Laboratories, Pharmacy and Biomedical Genetics Division, University Medical Centre Utrecht, Utrecht, The Netherlands.

Holly H Zimmerman (HH)

Department of Pediatrics, Division of Medical Genetics, University of Mississippi Medical Center, Jackson, Mississippi.

David Hunt (D)

Wessex Clinical Genetics Service, University Hospital Southampton NHS Foundation Trust, Southampton, UK.

Bryce A Mendelsohn (BA)

Division of Genetics, Department of Pediatrics, University of California, San Francisco, California.

Ulrike Kordaß (U)

MVZ für Humangenetik und Molekularpathologie GmbH, Greifswald, Germany.

Richard Webster (R)

The Department of Neurology and Neurosurgery, The Children's Hospital at Westmead, Westmead, NSW, Australia.

Margje Sinnema (M)

Department of Clinical Genetics, Maastricht University Medical Center+, azM, Maastricht, The Netherlands.
Department of Genetics and Cell Biology, Faculty of Health Medicine Life Sciences, Maastricht University Medical Center+, Maastricht University, Maastricht, The Netherlands.

Omar Abdul-Rahman (O)

Munroe-Meyer Institute for Genetics & Rehabilitation, University of Nebraska Medical Center, Omaha, Nebraska.

Vanessa Suckow (V)

Research Group Development and Disease, Max Planck Institute for Molecular Genetics, Berlin, Germany.

Alberto Fernández-Jaén (A)

Hospital Universitario Quirónsalud, Universidad Europea de Madrid, Madrid, Spain.

Kees van Roozendaal (K)

Department of Clinical Genetics, Maastricht University Medical Center+, azM, Maastricht, The Netherlands.

Servi J C Stevens (SJC)

Department of Clinical Genetics, Maastricht University Medical Center+, azM, Maastricht, The Netherlands.
Department of Genetics and Cell Biology, Faculty of Health Medicine Life Sciences, Maastricht University Medical Center+, Maastricht University, Maastricht, The Netherlands.

Merryn V E Macville (MVE)

Department of Clinical Genetics, Maastricht University Medical Center+, azM, Maastricht, The Netherlands.
Department of Genetics and Cell Biology, Faculty of Health Medicine Life Sciences, Maastricht University Medical Center+, Maastricht University, Maastricht, The Netherlands.

Salwan Al-Nasiry (S)

Department of Obstetrics and Gynecology, Prenatal Diagnostics & Therapy, Maastricht University Medical Center+, Maastricht, The Netherlands.

Koen van Gassen (K)

Laboratories, Pharmacy and Biomedical Genetics Division, University Medical Centre Utrecht, Utrecht, The Netherlands.

Norbert Utzig (N)

Klinik für Kinder- und Jugendmedizin, Universitätsmedizin Greifswald, Greifswald, Germany.

Suzanne M Koudijs (SM)

Department of Neurology, Maastricht University Medical Center+, Maastricht, The Netherlands.

Lesley McGregor (L)

SA Clinical Genetics Service, Women's and Children's Hospital, North Adelaide, SA, Australia.

Saskia M Maas (SM)

Department of Clinical Genetics, Amsterdam UMC, Amsterdam, The Netherlands.

Diana Baralle (D)

Wessex Clinical Genetics Service, University Hospital Southampton NHS Foundation Trust, Southampton, UK.
Faculty of Medicine, University of Southampton, Southampton, UK.

Abhijit Dixit (A)

City Hospital Campus, Nottingham University Hospitals NHS Trust, Nottingham, UK.

Peter Wieacker (P)

Institute of Human Genetics, Westfälische Wilhelms Universität Münster, Münster, Germany.

Marcus Lee (M)

Department of Pediatrics, Division of Pediatric Neurology, University of Mississippi Medical Center, Jackson, Mississippi.

Arthur S Lee (AS)

Department of Neurology, Boston Children's Hospital and Harvard Medical School, Boston, Massachusetts.
Broad Institute of MIT and Harvard, Cambridge, Massachusetts.

Elizabeth C Engle (EC)

Department of Neurology, Boston Children's Hospital and Harvard Medical School, Boston, Massachusetts.
Broad Institute of MIT and Harvard, Cambridge, Massachusetts.
Department of Ophthalmology, Boston Children's Hospital and Harvard Medical School, Boston, Massachusetts.
Howard Hughes Medical Institute, Chevy Chase, Maryland.

Gunnar Houge (G)

Department of Medical Genetics, Haukeland University Hospital, Bergen, Norway.

Gyri A Gradek (GA)

Department of Medical Genetics, Haukeland University Hospital, Bergen, Norway.

Andrew G L Douglas (AGL)

Wessex Clinical Genetics Service, University Hospital Southampton NHS Foundation Trust, Southampton, UK.
Human Development and Health, Faculty of Medicine, University of Southampton, UK.

Cheryl Longman (C)

West of Scotland Regional Genetic Centre, Queen Elizabeth University Hospital, Glasgow, Scotland, UK.

Shelagh Joss (S)

West of Scotland Regional Genetic Centre, Queen Elizabeth University Hospital, Glasgow, Scotland, UK.

Danita Velasco (D)

Department of Pediatrics, Munroe-Meyer Institute for Genetics & Rehabilitation, University of Nebraska Medical Center, Omaha, Nebraska.

Raoul C Hennekam (RC)

Department of Pediatrics, Amsterdam UMC, Amsterdam, The Netherlands.

Hiromi Hirata (H)

Department of Chemistry and Biological Science, College of Science and Engineering, Aoyama Gakuin University, Sagamihara, Japan.

Vera M Kalscheuer (VM)

Research Group Development and Disease, Max Planck Institute for Molecular Genetics, Berlin, Germany.

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