Factors Associated with Perception of the Quality of Physicians' End-of-life Communication in Long-Term Care Facilities: PACE Cross-Sectional Study.


Journal

Journal of the American Medical Directors Association
ISSN: 1538-9375
Titre abrégé: J Am Med Dir Assoc
Pays: United States
ID NLM: 100893243

Informations de publication

Date de publication:
03 2020
Historique:
received: 10 04 2019
revised: 17 07 2019
accepted: 20 07 2019
pubmed: 16 9 2019
medline: 24 6 2021
entrez: 16 9 2019
Statut: ppublish

Résumé

To examine factors associated with perceived quality of communication with physicians by relatives of dying residents of long-term care facilities (LTCFs). A cross-sectional retrospective study in a representative sample of LTCFs conducted in 2015. In each LTCF, deaths of residents during the 3 months before the researcher's visit were reported. Structured questionnaires were sent to the identified relatives of deceased residents. A total of 736 relatives of deceased residents in 210 LTCFs (in Belgium, Finland, Italy, the Netherlands, and Poland). The Family Perception of Physician-Family Communication scale (FPPFC) was used to assess the quality of end-of-life (EOL) communication with physicians as perceived by relatives. We applied multilevel linear regression models to find factors associated with the FPPFC score. The quality of EOL communication with physicians was perceived by relatives as higher when the relative spent more than 14 hours with the resident in the last week of the resident's life (b = 0.205; P = .044), and when the treating physician visited the resident at least 3 times in the last week of the resident's life (b = 0.286; P = .002) or provided the resident with palliative care (b = 0.223; P = .003). Relatives with higher emotional burden perceived the quality of EOL communication with physicians as lower (b = -0.060; P < .001). These results had been adjusted to countries and LTCF types with physicians employed on-site or off-site of the facility. The quality of EOL communication with physicians, as perceived by relatives of dying LTCF residents, is associated with the number of physician visits and amount of time spent by the relative with the resident in the last week of the resident's life, and relatives' emotional burden. LTCF managers should organize care for dying residents in a way that enables frequent interactions between physicians and relatives, and emotional support to relatives to improve their satisfaction with EOL communication.

Identifiants

pubmed: 31521539
pii: S1525-8610(19)30578-X
doi: 10.1016/j.jamda.2019.07.018
pii:
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

439.e1-439.e8

Investigateurs

Eddy Adang (E)
Paula Andreasen (P)
Danni Collingridge Moore (D)
Hein van Hout (H)
Maud Ten Koppel (M)
Federica Mammarella (F)
Martina Mercuri (M)
Bregje D Onwuteaka-Philipsen (BD)
Lara Pivodic (L)
Paola Rossi (P)
Eleanor Sowerby (E)
Agata Stodolska (A)
Anne Wichmann (A)
Jenny T van der Steen (JT)
Myrra Vernooij-Dassen (M)
None The European Association For Palliative Care Onlus
None European Forum For Primary Care
None Age Platform Europe
None Alzheimer Europe

Informations de copyright

Copyright © 2019 AMDA – The Society for Post-Acute and Long-Term Care Medicine. All rights reserved.

Auteurs

Ilona Barańska (I)

Unit for Research on Aging Society, Department of Sociology, Chair of Epidemiology and Preventive Medicine, Faculty of Medicine, Jagiellonian University Medical College, Kraków, Poland; Faculty of Health Sciences, Jagiellonian University Medical College, Kraków, Poland.

Violetta Kijowska (V)

Unit for Research on Aging Society, Department of Sociology, Chair of Epidemiology and Preventive Medicine, Faculty of Medicine, Jagiellonian University Medical College, Kraków, Poland.

Yvonne Engels (Y)

Department of Anesthesiology, Pain and Palliative Medicine, Radboud University Medical Center, Nijmegen, the Netherlands.

Harriet Finne-Soveri (H)

National Institute for Health and Welfare, Helsinki, Finland.

Katherine Froggatt (K)

Division of Health Research, Lancaster University, Lancaster, UK.

Giovanni Gambassi (G)

Fondazione Policlinico Universitario A. Gemelli IRCCS, Rome, Italy; Università Cattolica del Sacro Cuore, Rome, Italy.

Teija Hammar (T)

National Institute for Health and Welfare, Helsinki, Finland.

Mariska Oosterveld-Vlug (M)

Department of Public and Occupational Health, Amsterdam Public Health Research Institute, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.

Sheila Payne (S)

Division of Health Research, Lancaster University, Lancaster, UK.

Nele Van Den Noortgate (N)

Department of Geriatric Medicine, Ghent University Hospital, Ghent, Belgium.

Tinne Smets (T)

Department of Family Medicine and Chronic Care, End-of- Life Care Research Group, Vrije Universiteit Brussel (VUB) and Ghent University, Brussels, Belgium.

Luc Deliens (L)

Department of Family Medicine and Chronic Care, End-of- Life Care Research Group, Vrije Universiteit Brussel (VUB) and Ghent University, Brussels, Belgium.

Lieve Van den Block (L)

Department of Family Medicine and Chronic Care, End-of- Life Care Research Group, Vrije Universiteit Brussel (VUB) and Ghent University, Brussels, Belgium.

Katarzyna Szczerbińska (K)

Unit for Research on Aging Society, Department of Sociology, Chair of Epidemiology and Preventive Medicine, Faculty of Medicine, Jagiellonian University Medical College, Kraków, Poland. Electronic address: katarzyna.szczerbinska@uj.edu.pl.

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