Extending the phenotypic spectrum of Bohring-Opitz syndrome: Mild case confirmed by functional studies.


Journal

American journal of medical genetics. Part A
ISSN: 1552-4833
Titre abrégé: Am J Med Genet A
Pays: United States
ID NLM: 101235741

Informations de publication

Date de publication:
01 2020
Historique:
received: 06 05 2019
revised: 02 10 2019
accepted: 09 10 2019
pubmed: 7 11 2019
medline: 29 12 2020
entrez: 7 11 2019
Statut: ppublish

Résumé

Bohring-Opitz syndrome (BOS) has been described as a clinically recognizable genetic syndrome since 1999. Clinical diagnostic criteria were established in 2011 and include microcephaly, trigonocephaly, distinctive craniofacial dysmorphic features, facial nevus flammeus, failure to thrive, and severe developmental delays. The same year, different de novo heterozygous nonsense mutations in the ASXL1 were found in affected individuals. Since then, several cases have been reported confirming the association between this chromatin remodeling gene and BOS. Most affected individuals die in early childhood because of unexplained bradycardia, obstructive apnea, or pulmonary infections. Those that survive usually cannot walk independently and are nonverbal. Some have had success using walkers and braces in late childhood. While few are able to speak, many have been able to express basic needs using communication devices as well as gestures with associated basic vocalizations. In this article, we present a mild case of BOS with a de novo pathogenic mutation c.1720-2A>G (p.I574VfsX22) in ASXL1 detected on whole-exome sequencing and confirmed by functional analysis of the messenger RNA splicing pattern on the patient's fibroblasts. She has typical dysmorphic features and is able to run and walk independently as well as to communicate with basic sign language.

Identifiants

pubmed: 31692235
doi: 10.1002/ajmg.a.61397
doi:

Substances chimiques

ASXL1 protein, human 0
Codon, Nonsense 0
Repressor Proteins 0

Types de publication

Case Reports Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

201-204

Subventions

Organisme : Catalan Government
ID : 2014SGR932
Pays : International
Organisme : CIBERER
ID : U720
Pays : International
Organisme : Ministerio de Economia y Competitividad de Espana
ID : SAF2016-75948-R
Pays : International

Informations de copyright

© 2019 Wiley Periodicals, Inc.

Références

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Bohring, A., Silengo, M., Lerone, M., Superneau, D. W., Spaich, C., Braddock, S. R., … Opitz, J. M. (1999). Severe end of Opitz trigonocephaly (C) syndrome or new syndrome? American Journal of Medical Genetics, 85, 438-446.
Hastings, R., Cobben, J. M., Gillessen-Kaesbach, G., Goodship, J., Hove, H., Kjaergaard, S., … Newbury-Ecob, R. (2011). Bohring-Opitz (Oberklaid-Danks) syndrome: Clinical study, review of the literature, and discussion of possible pathogenesis. European Journal of Human Genetics, 19, 513-519.
Hoischen, A., van Bon, B. W., Rodriguez-Santiago, B., Gilissen, C., Vissers, L. E., de Vries, P., … de Vries, B. B. B. A. (2011). De novo nonsense mutations in ASXL1 cause Bohring-Opitz syndrome. Nature Genetics, 43, 729-731.
Ota, K., Brydun, A., Itoh-Nakadai, A., Sun, J., & Igarashi, K. (2014). Bach1 deficiency and accompanying overexpression of heme oxygenase-1 do not influence aging or tumorigenesis in mice. Oxidative Medicine and Cellular Longevity, 757901, 1-12.
Russell, B., Johnston, J. J., Biesecker, L. G., Kramer, N., Pickart, A., Rhead, W., … Graham, J. M., Jr. (2015). Clinical management of patients with ASXL1 mutations and Bohring-Opitz syndrome, emphasizing the need for Wilms tumor surveillance. American Journal of Medical Genetics Part A, 167, 2122-2131.
Russell, B., Tan, W. H., & Graham, J. M., Jr. (2018). Bohring-Opitz Syndrome. In M. P. Adam, H. H. Ardinger, R. A. Pagon, et al. (Eds.), GeneReviews® [Internet]. Seattle, WA: University of Washington, Seattle; 1993-2019 https://www.ncbi.nlm.nih.gov/books/NBK481833/
Tan, M. K., Lim, H. J., Bennett, E. J., Shi, Y., & Harper, J. W. (2013). Parallel SCF adaptor capture proteomics reveals a role for SCFFBXL17 in NRF2 activation via BACH1 repressor turnover. Molecular Cell, 52, 9-24.
Urreizti, R., Roca-Ayats, N., Trepat, J., Garcia-Garcia, F., Aleman, A., Orteschi, D., … Grinberg, D. (2016). Screening of CD96 and ASXL1 in 11 patients with Opitz C or Bohring-Opitz syndromes. American Journal of Medical Genetics. Part A, 170, 24-31.
Yuan, B., Neira, J., Pehlivan, D., Santiago-Sim, T., Song, X., Rosenfeld, J., … Liu, P. (2019). Clinical exome sequencing reveals locus heterogeneity and phenotypic variability of cohesinopathies. Genetics in Medicine, 3, 663-675.

Auteurs

Eyby Leon (E)

Rare Disease Institute, Children's National Health System, Washington, District of Columbia.

Jullianne Diaz (J)

Rare Disease Institute, Children's National Health System, Washington, District of Columbia.

Laura Castilla-Vallmanya (L)

Department of Genetics, Microbiology and Statistics, Faculty of Biology, IBUB, IRSJD, CIBERER, University of Barcelona, Barcelona, Spain.

Daniel Grinberg (D)

Department of Genetics, Microbiology and Statistics, Faculty of Biology, IBUB, IRSJD, CIBERER, University of Barcelona, Barcelona, Spain.

Susanna Balcells (S)

Department of Genetics, Microbiology and Statistics, Faculty of Biology, IBUB, IRSJD, CIBERER, University of Barcelona, Barcelona, Spain.

Roser Urreizti (R)

Department of Genetics, Microbiology and Statistics, Faculty of Biology, IBUB, IRSJD, CIBERER, University of Barcelona, Barcelona, Spain.

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