Informed Consent for Genetic and Genomic Research.

Disclosure / legislation & jurisprudence Genetic Research / legislation & jurisprudence Genome, Human / genetics Genomics / legislation & jurisprudence Humans Informed Consent Intellectual Property Risk Factors Exome Sequencing / methods Whole Genome Sequencing / methods
consent disclosure ethics genetic testing regulatory

Journal

Current protocols in human genetics
ISSN: 1934-8258
Titre abrégé: Curr Protoc Hum Genet
Pays: United States
ID NLM: 101287858

Informations de publication

Date de publication:
12 2020
Historique:
entrez: 17 11 2020
pubmed: 18 11 2020
medline: 29 6 2021
Statut: ppublish

Résumé

Genetic research often utilizes or generates information that is potentially sensitive to individuals, families, or communities. For these reasons, genetic research may warrant additional scrutiny from investigators and governmental regulators, compared to other types of biomedical research. The informed consent process should address the range of social and psychological issues that may arise in genetic research. This article addresses a number of these issues, including recruitment of participants, disclosure of results, psychological impact of results, insurance and employment discrimination, community engagement, consent for tissue banking, and intellectual property issues. Points of consideration are offered to assist in the development of protocols and consent processes in light of contemporary debates on a number of these issues. © 2020 Wiley Periodicals LLC.

Identifiants

DOI: 10.1002/cphg.104 PMID: 33202103
pubmed: 33202103
doi: 10.1002/cphg.104
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

e104

Informations de copyright

© 2020 Wiley Periodicals LLC.

Auteurs

Jeffrey R Botkin (JR)

University of Utah, Salt Lake City, Utah.

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Classifications MeSH

questionsmedicales.fr › Sciences de l'information › Communication › Divulgation › Informed Consent for Genetic and Genomic Research.
questionsmedicales.fr › Disciplines des sciences naturelles › Science › Recherche › Recherche biomédicale › Recherche génétique › Informed Consent for Genetic and Genomic Research.
questionsmedicales.fr › Phénomènes génétiques › Structures génétiques › Génome › Génome humain › Informed Consent for Genetic and Genomic Research.
questionsmedicales.fr › Disciplines des sciences naturelles › Disciplines des sciences biologiques › Biologie › Génétique › Génomique › Informed Consent for Genetic and Genomic Research.
questionsmedicales.fr › Eucaryotes › Animaux › Chordés › Vertébrés › Mammifères › Eutheria › Primates › Haplorhini › Catarrhini › Hominidae › Humains › Informed Consent for Genetic and Genomic Research.
questionsmedicales.fr › Organisations et économie des soins de santé › Contrôle social formel › Jurisprudence › Consentement libre et éclairé › Informed Consent for Genetic and Genomic Research.
questionsmedicales.fr › Organisations et économie des soins de santé › Contrôle social formel › Jurisprudence › Propriété intellectuelle › Informed Consent for Genetic and Genomic Research.
questionsmedicales.fr › Environnement et santé publique › Santé publique › Méthodes épidémiologiques › Statistiques comme sujet › Probabilité › Risque › Facteurs de risque › Informed Consent for Genetic and Genomic Research.
questionsmedicales.fr › Techniques d'investigation › Techniques génétiques › Analyse de séquence › Analyse de séquence d'ADN › Séquençage du génome entier › Séquençage de l'exome › Informed Consent for Genetic and Genomic Research.
questionsmedicales.fr › Techniques d'investigation › Techniques génétiques › Analyse de séquence › Analyse de séquence d'ADN › Séquençage du génome entier › Informed Consent for Genetic and Genomic Research.