Exome sequencing for structurally normal fetuses-yields and ethical issues.


Journal

European journal of human genetics : EJHG
ISSN: 1476-5438
Titre abrégé: Eur J Hum Genet
Pays: England
ID NLM: 9302235

Informations de publication

Date de publication:
02 2023
Historique:
received: 10 01 2022
accepted: 26 07 2022
revised: 01 06 2022
pmc-release: 01 02 2024
pubmed: 8 9 2022
medline: 10 2 2023
entrez: 7 9 2022
Statut: ppublish

Résumé

The yield of chromosomal microarray analysis (CMA) is well established in structurally normal fetuses (0.4-1.4%). We aimed to determine the incremental yield of exome sequencing (ES) in this population. From February 2017 to April 2022, 1,526 fetuses were subjected to ES; 482 of them were structurally normal (31.6%). Only pathogenic and likely pathogenic (P/LP) variants, per the American College of Medical Genetics and Genomics (ACMG) classification, were reported. Additionally, ACMG secondary findings relevant to childhood were reported. Four fetuses (4/482; 0.8%) had P/LP variants indicating a moderate to severe disease in ATP7B, NR2E3, SPRED1 and FGFR3, causing Wilson disease, Enhanced S-cone syndrome, Legius and Muenke syndromes, respectively. Two fetuses had secondary findings, in RET and DSP. Our data suggest that offering only CMA for structurally normal fetuses may provide false reassurance. Prenatal ES mandates restrictive analysis and careful management combined with pre and post-test genetic counseling.

Identifiants

pubmed: 36071243
doi: 10.1038/s41431-022-01169-9
pii: 10.1038/s41431-022-01169-9
pmc: PMC9905544
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

164-168

Commentaires et corrections

Type : CommentIn

Informations de copyright

© 2022. The Author(s), under exclusive licence to European Society of Human Genetics.

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Auteurs

Hagit Daum (H)

Department of Genetics, Hadassah Medical Organization, Jerusalem, Israel. dhagit100@gmail.com.
Department of Genetics, Hadassah Medical Organization and Faculty of Medicine, Hebrew University of Jerusalem, Jerusalem, Israel. dhagit100@gmail.com.

Tamar Harel (T)

Department of Genetics, Hadassah Medical Organization, Jerusalem, Israel.
Department of Genetics, Hadassah Medical Organization and Faculty of Medicine, Hebrew University of Jerusalem, Jerusalem, Israel.

Talya Millo (T)

Department of Genetics, Hadassah Medical Organization, Jerusalem, Israel.

Avital Eilat (A)

Department of Genetics, Hadassah Medical Organization, Jerusalem, Israel.
Department of Genetics, Hadassah Medical Organization and Faculty of Medicine, Hebrew University of Jerusalem, Jerusalem, Israel.

Duha Fahham (D)

Department of Genetics, Hadassah Medical Organization, Jerusalem, Israel.
Department of Genetics, Hadassah Medical Organization and Faculty of Medicine, Hebrew University of Jerusalem, Jerusalem, Israel.

Shiri Gershon-Naamat (S)

Department of Genetics, Hadassah Medical Organization, Jerusalem, Israel.

Adily Basal (A)

Department of Genetics, Hadassah Medical Organization, Jerusalem, Israel.

Chaggai Rosenbluh (C)

Department of Genetics, Hadassah Medical Organization, Jerusalem, Israel.

Nili Yanai (N)

Department of Obstetrics and Gynecology, Hadassah Medical Organization and Faculty of Medicine, Hebrew University of Jerusalem, Jerusalem, Israel.

Shay Porat (S)

Department of Obstetrics and Gynecology, Hadassah Medical Organization and Faculty of Medicine, Hebrew University of Jerusalem, Jerusalem, Israel.

Doron Kabiri (D)

Department of Obstetrics and Gynecology, Hadassah Medical Organization and Faculty of Medicine, Hebrew University of Jerusalem, Jerusalem, Israel.

Simcha Yagel (S)

Department of Obstetrics and Gynecology, Hadassah Medical Organization and Faculty of Medicine, Hebrew University of Jerusalem, Jerusalem, Israel.

Dan V Valsky (DV)

Department of Obstetrics and Gynecology, Hadassah Medical Organization and Faculty of Medicine, Hebrew University of Jerusalem, Jerusalem, Israel.

Orly Elpeleg (O)

Department of Genetics, Hadassah Medical Organization, Jerusalem, Israel.
Department of Genetics, Hadassah Medical Organization and Faculty of Medicine, Hebrew University of Jerusalem, Jerusalem, Israel.

Vardiella Meiner (V)

Department of Genetics, Hadassah Medical Organization, Jerusalem, Israel.
Department of Genetics, Hadassah Medical Organization and Faculty of Medicine, Hebrew University of Jerusalem, Jerusalem, Israel.

Hagar Mor-Shaked (H)

Department of Genetics, Hadassah Medical Organization, Jerusalem, Israel. hagarmor@hadassah.org.il.
Department of Genetics, Hadassah Medical Organization and Faculty of Medicine, Hebrew University of Jerusalem, Jerusalem, Israel. hagarmor@hadassah.org.il.

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Classifications MeSH