Sociotechnical Cross-Country Analysis of Contextual Factors That Impact Patients' Access to Electronic Health Records in 4 European Countries: Framework Evaluation Study.

EHR electronic health record health data national survey patient access patient portal patient-accessible electronic health record sociotechnical analysis web-based medical record web-based record access

Journal

Journal of medical Internet research
ISSN: 1438-8871
Titre abrégé: J Med Internet Res
Pays: Canada
ID NLM: 100959882

Informations de publication

Date de publication:
26 Aug 2024
Historique:
received: 22 12 2023
accepted: 08 04 2024
revised: 05 04 2024
medline: 27 8 2024
pubmed: 26 8 2024
entrez: 26 8 2024
Statut: epublish

Résumé

The NORDeHEALTH project studies patient-accessible electronic health records (PAEHRs) in Estonia, Finland, Norway, and Sweden. Such country comparisons require an analysis of the sociotechnical context of these services. Although sociotechnical analyses of PAEHR services have been carried out in the past, a framework specifically tailored to in-depth cross-country analysis has not been developed. This study aims to develop and evaluate a method for a sociotechnical analysis of PAEHRs that advances a framework for sociotechnical analysis of eHealth solutions first presented by Sittig and Singh. This first article in a series presents the development of the method and a cross-country comparison of the contextual factors that enable PAEHR access and use. The dimensions of the framework for sociotechnical analysis were thoroughly discussed and extended in a series of workshops with international stakeholders, all being eHealth researchers focusing on PAEHRs. All countries were represented in the working group to make sure that important national perspectives were covered. A spreadsheet with relevant questions related to the studied services and the various dimensions of the sociotechnical framework was constructed and distributed to the 4 participating countries, and the project participants researched various national sources to provide the relevant data for the comparisons in the 10 sociotechnical dimensions. In total, 3 dimensions were added to the methodology of Sittig and Singh to separate clinical content from features and functions of PAEHRs and demonstrate basic characteristics of the different countries regarding national and regional steering of health care and information and communications technology developments. The final framework contained the following dimensions: metadata; hardware and software computing infrastructure; features and functions; clinical content shared with patients; human-computer interface; people; workflow and communication; the health care organization's internal policies, procedures, and culture; national rules, regulations, and incentives; system measurement and monitoring; and health care system context. The dimensions added during the study mostly concerned background information needed for cross-country comparisons in particular. Several similarities were identified among the compared countries, especially regarding hardware and software computing infrastructure. All countries had, for example, one national access point, and patients are provided a PAEHR automatically. Most of the differences could be identified in the health care system context dimension. One important difference concerned the governing of information and communications technology development, where different levels (state, region, and municipality) were responsible in different countries. This is the first large-scale international sociotechnical analysis of services for patients to access their electronic health records; this study compared services in Estonia, Finland, Norway, and Sweden. A methodology for such an analysis was developed and is presented to enable comparison studies in other national contexts to enable future implementations and evaluations of PAEHRs.

Sections du résumé

BACKGROUND BACKGROUND
The NORDeHEALTH project studies patient-accessible electronic health records (PAEHRs) in Estonia, Finland, Norway, and Sweden. Such country comparisons require an analysis of the sociotechnical context of these services. Although sociotechnical analyses of PAEHR services have been carried out in the past, a framework specifically tailored to in-depth cross-country analysis has not been developed.
OBJECTIVE OBJECTIVE
This study aims to develop and evaluate a method for a sociotechnical analysis of PAEHRs that advances a framework for sociotechnical analysis of eHealth solutions first presented by Sittig and Singh. This first article in a series presents the development of the method and a cross-country comparison of the contextual factors that enable PAEHR access and use.
METHODS METHODS
The dimensions of the framework for sociotechnical analysis were thoroughly discussed and extended in a series of workshops with international stakeholders, all being eHealth researchers focusing on PAEHRs. All countries were represented in the working group to make sure that important national perspectives were covered. A spreadsheet with relevant questions related to the studied services and the various dimensions of the sociotechnical framework was constructed and distributed to the 4 participating countries, and the project participants researched various national sources to provide the relevant data for the comparisons in the 10 sociotechnical dimensions.
RESULTS RESULTS
In total, 3 dimensions were added to the methodology of Sittig and Singh to separate clinical content from features and functions of PAEHRs and demonstrate basic characteristics of the different countries regarding national and regional steering of health care and information and communications technology developments. The final framework contained the following dimensions: metadata; hardware and software computing infrastructure; features and functions; clinical content shared with patients; human-computer interface; people; workflow and communication; the health care organization's internal policies, procedures, and culture; national rules, regulations, and incentives; system measurement and monitoring; and health care system context. The dimensions added during the study mostly concerned background information needed for cross-country comparisons in particular. Several similarities were identified among the compared countries, especially regarding hardware and software computing infrastructure. All countries had, for example, one national access point, and patients are provided a PAEHR automatically. Most of the differences could be identified in the health care system context dimension. One important difference concerned the governing of information and communications technology development, where different levels (state, region, and municipality) were responsible in different countries.
CONCLUSIONS CONCLUSIONS
This is the first large-scale international sociotechnical analysis of services for patients to access their electronic health records; this study compared services in Estonia, Finland, Norway, and Sweden. A methodology for such an analysis was developed and is presented to enable comparison studies in other national contexts to enable future implementations and evaluations of PAEHRs.

Identifiants

pubmed: 39186760
pii: v26i1e55752
doi: 10.2196/55752
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

e55752

Informations de copyright

©Jonas Moll, Isabella Scandurra, Annika Bärkås, Charlotte Blease, Maria Hägglund, Iiris Hörhammer, Bridget Kane, Eli Kristiansen, Peeter Ross, Rose-Mharie Åhlfeldt, Gunnar O Klein. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 26.08.2024.

Auteurs

Jonas Moll (J)

Centre for Empirical Research on Information systems, School of Business, Örebro University, Örebro, Sweden.

Isabella Scandurra (I)

Centre for Empirical Research on Information systems, School of Business, Örebro University, Örebro, Sweden.

Annika Bärkås (A)

Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden.

Charlotte Blease (C)

Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
Digital Psychiatry, Department of Psychiatry Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA, United States.

Maria Hägglund (M)

Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden.

Iiris Hörhammer (I)

Department of Computer Science, Aalto University, Espoo, Finland.

Bridget Kane (B)

Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
Karlstad University Business School, Karlstad, Sweden.

Eli Kristiansen (E)

Norwegian Centre for E-health Research, University Hospital of North Norway, Tromsø, Norway.

Peeter Ross (P)

E-Medicine Centre, Department of Health Technologies, Tallinn University of Technology, Tallinn, Estonia.
Research Department, East Tallinn Central Hospital, Tallinn, Estonia.

Rose-Mharie Åhlfeldt (RM)

School of Informatics, University of Skövde, Skövde, Sweden.

Gunnar O Klein (GO)

Centre for Empirical Research on Information systems, School of Business, Örebro University, Örebro, Sweden.

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