Validation of the Swedish Multiple Sclerosis Register: Further Improving a Resource for Pharmacoepidemiologic Evaluations.
Antirheumatic Agents
/ therapeutic use
Cohort Studies
Humans
Immunotherapy
/ statistics & numerical data
Magnetic Resonance Imaging
/ statistics & numerical data
Medical Records
/ statistics & numerical data
Multiple Sclerosis
/ drug therapy
Pharmacoepidemiology
/ standards
Recurrence
Registries
/ standards
Regression Analysis
Sweden
/ epidemiology
Journal
Epidemiology (Cambridge, Mass.)
ISSN: 1531-5487
Titre abrégé: Epidemiology
Pays: United States
ID NLM: 9009644
Informations de publication
Date de publication:
03 2019
03 2019
Historique:
entrez:
6
2
2019
pubmed:
6
2
2019
medline:
21
5
2019
Statut:
ppublish
Résumé
The Swedish Multiple Sclerosis Register is a national register monitoring treatment and clinical course for all Swedish multiple sclerosis (MS) patients, with high coverage and close integration with the clinic. Despite its great value for epidemiologic research, it has not previously been validated. In this brief report, we summarize a large validation of >3,000 patients in the register using clinical chart review in the context of the COMBAT-MS study. While further improving the data quality for a central cohort of patients available for future epidemiologic research, this study also allowed us to estimate the accuracy and completeness of the register data.
Identifiants
pubmed: 30721167
doi: 10.1097/EDE.0000000000000948
pii: 00001648-201903000-00011
pmc: PMC6369893
doi:
Substances chimiques
Antirheumatic Agents
0
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Validation Study
Langues
eng
Sous-ensembles de citation
IM
Pagination
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