Optimizing of a question prompt list to improve communication about the heart failure trajectory in patients, families, and health care professionals.
Communication
End-of-life care
Heart failure
Illness trajectory
Question prompt list
Journal
BMC palliative care
ISSN: 1472-684X
Titre abrégé: BMC Palliat Care
Pays: England
ID NLM: 101088685
Informations de publication
Date de publication:
15 Oct 2020
15 Oct 2020
Historique:
received:
21
06
2020
accepted:
01
10
2020
entrez:
16
10
2020
pubmed:
17
10
2020
medline:
29
6
2021
Statut:
epublish
Résumé
The aim of this study was to optimize a Question Prompt List which is designed to improve communication about the heart failure trajectory among patients, family members, and health care professionals. Data were collected in a two-round Delphi survey and a cross-sectional survey, including patients with heart failure, their family members, and health care professionals working in heart failure care in Sweden and the Netherlands. Acceptability for and demand of the Question Prompt List were assessed. A total of 96 patients, 63 family members and 26 health care professionals participated in the study. Regarding acceptability, most of the original questions were found to be relevant by the participants for inclusion in the Question Prompt List but some cultural differences exist, which resulted in two versions of the list: a Swedish version including 33 questions and a Dutch version including 38 questions. Concerning demand, participants reported that they were interested in discussing the questions in the revised Question Prompt List with a physician or a nurse. Few patients and family members reported that they were worried by the questions in the Question Prompt List and hence did not want to discuss the questions. This Question Prompt List has successfully been adapted into a Swedish version and a Dutch version and includes questions about the HF trajectory which patients, their families, and health care professionals perceived to be relevant for discussion in clinical practice. Overall, patients and family members were not worried about the content in the Question Prompt List and if used in accordance with patients' and family members' preferences, the Question Prompt List can help to improve communication about the heart failure trajectory.
Sections du résumé
BACKGROUND
BACKGROUND
The aim of this study was to optimize a Question Prompt List which is designed to improve communication about the heart failure trajectory among patients, family members, and health care professionals.
METHODS
METHODS
Data were collected in a two-round Delphi survey and a cross-sectional survey, including patients with heart failure, their family members, and health care professionals working in heart failure care in Sweden and the Netherlands. Acceptability for and demand of the Question Prompt List were assessed.
RESULTS
RESULTS
A total of 96 patients, 63 family members and 26 health care professionals participated in the study. Regarding acceptability, most of the original questions were found to be relevant by the participants for inclusion in the Question Prompt List but some cultural differences exist, which resulted in two versions of the list: a Swedish version including 33 questions and a Dutch version including 38 questions. Concerning demand, participants reported that they were interested in discussing the questions in the revised Question Prompt List with a physician or a nurse. Few patients and family members reported that they were worried by the questions in the Question Prompt List and hence did not want to discuss the questions.
CONCLUSIONS
CONCLUSIONS
This Question Prompt List has successfully been adapted into a Swedish version and a Dutch version and includes questions about the HF trajectory which patients, their families, and health care professionals perceived to be relevant for discussion in clinical practice. Overall, patients and family members were not worried about the content in the Question Prompt List and if used in accordance with patients' and family members' preferences, the Question Prompt List can help to improve communication about the heart failure trajectory.
Identifiants
pubmed: 33059632
doi: 10.1186/s12904-020-00665-3
pii: 10.1186/s12904-020-00665-3
pmc: PMC7566035
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
161Subventions
Organisme : Forskningsrådet i Sydöstra Sverige
ID : 753711
Organisme : Research and scholarship management in Region Östergötland
ID : 756931
Références
Appl Nurs Res. 2018 Jun;41:41-45
pubmed: 29853212
Eur J Heart Fail. 2017 Nov;19(11):1447-1454
pubmed: 28871622
Circulation. 2014 Jan 28;129(4):422-9
pubmed: 24243857
Am J Prev Med. 2009 May;36(5):452-7
pubmed: 19362699
Eur J Cardiovasc Nurs. 2014 Apr;13(2):152-61
pubmed: 24480779
J Pain Symptom Manage. 2007 Jul;34(1):81-93
pubmed: 17531434
Palliat Med. 2015 Apr;29(4):310-23
pubmed: 25239128
Palliat Med. 2015 Mar;29(3):260-7
pubmed: 25488909
Palliat Med. 2018 Apr;32(4):881-890
pubmed: 29235422
BMC Palliat Care. 2018 Jun 11;17(1):85
pubmed: 29890974
Palliat Med. 2020 Mar;34(3):291-299
pubmed: 31752593
Eur J Cardiovasc Nurs. 2019 Jun;18(5):375-388
pubmed: 30760021
ESC Heart Fail. 2020 Jun;7(3):878-882
pubmed: 32159281
Eur J Heart Fail. 2009 May;11(5):433-43
pubmed: 19386813
Health Soc Care Community. 2006 Nov;14(6):482-90
pubmed: 17059490
Circulation. 2016 Sep 13;134(11):e198-225
pubmed: 27503067
J Cardiovasc Nurs. 2007 May-Jun;22(3):159-65
pubmed: 17545818
Crit Rev Oncol Hematol. 2011 Oct;80(1):145-59
pubmed: 21075644
Patient Educ Couns. 2015 Jun 3;:
pubmed: 26104993
Palliat Med. 2013 Sep;27(8):779-88
pubmed: 23630055
Int J Nurs Stud. 2017 Feb;67:31-40
pubmed: 27912108
Curr Cardiol Rev. 2018;14(2):128-137
pubmed: 29366424
Eur J Heart Fail. 2016 Aug;18(8):891-975
pubmed: 27207191
Patient Educ Couns. 2001 Mar;42(3):231-8
pubmed: 11164322
BMC Geriatr. 2015 Oct 15;15:125
pubmed: 26470713
Support Care Cancer. 2017 Jan;25(1):51-58
pubmed: 27539133
Crit Care Nurse. 2016 Dec;36(6):24-31
pubmed: 27908943
Eur J Heart Fail. 2018 Sep;20(9):1348-1349
pubmed: 29963736
Palliat Support Care. 2011 Jun;9(2):173-80
pubmed: 24468485
Eur J Cardiovasc Nurs. 2020 May 5;:1474515120918962
pubmed: 32370680
Leuk Res. 2015 Jun;39(6):599-605
pubmed: 25850728
Circulation. 2017 Oct 17;136(16):e232-e268
pubmed: 28923988
Psychooncology. 2015 Mar;24(3):245-52
pubmed: 25082386
Br J Gen Pract. 2011 Jan;61(582):e49-62
pubmed: 21401993
Eur J Cardiovasc Nurs. 2020 May 5;:1474515120919386
pubmed: 32370552
Can J Cardiol. 2007 Aug;23(10):791-6
pubmed: 17703257
Patient Educ Couns. 2005 Feb;56(2):240-8
pubmed: 15653255
J Clin Nurs. 2016 Sep;25(17-18):2413-29
pubmed: 27273246
J Am Heart Assoc. 2017 Sep 22;6(9):
pubmed: 28939708
J Adv Nurs. 1987 Nov;12(6):729-34
pubmed: 3320139
J Clin Gastroenterol. 2020 Nov/Dec;54(10):898-904
pubmed: 32301836