Epileptic encephalopathy caused by ARV1 deficiency: Refinement of the genotype-phenotype spectrum and functional impact on GPI-anchored proteins.


Journal

Clinical genetics
ISSN: 1399-0004
Titre abrégé: Clin Genet
Pays: Denmark
ID NLM: 0253664

Informations de publication

Date de publication:
11 2021
Historique:
revised: 21 06 2021
received: 07 05 2021
accepted: 19 07 2021
pubmed: 24 7 2021
medline: 19 2 2022
entrez: 23 7 2021
Statut: ppublish

Résumé

Early infantile epileptic encephalopathy 38 (EIEE38, MIM #617020) is caused by biallelic variants in ARV1, encoding a transmembrane protein of the endoplasmic reticulum with a pivotal role in glycosylphosphatidylinositol (GPI) biosynthesis. We ascertained seven new patients from six unrelated families harboring biallelic variants in ARV1, including five novel variants. Affected individuals showed psychomotor delay, hypotonia, early onset refractory seizures followed by regression and specific neuroimaging features. Flow cytometric analysis on patient fibroblasts showed a decrease in GPI-anchored proteins on the cell surface, supporting a lower residual activity of the mutant ARV1 as compared to the wildtype. A rescue assay through the transduction of lentivirus expressing wild type ARV1 cDNA effectively rescued these alterations. This study expands the clinical and molecular spectrum of the ARV1-related encephalopathy, confirming the essential role of ARV1 in GPI biosynthesis and brain function.

Identifiants

pubmed: 34296759
doi: 10.1111/cge.14033
doi:

Substances chimiques

ARV1 protein, human 0
Carrier Proteins 0
GPI-Linked Proteins 0
Glycosylphosphatidylinositols 0
Membrane Proteins 0

Types de publication

Case Reports Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

607-614

Subventions

Organisme : CIHR
Pays : Canada
Organisme : Fonds de Recherche du Québec - Santé
Organisme : Region of Southern Denmark

Informations de copyright

© 2021 John Wiley & Sons A/S. Published by John Wiley & Sons Ltd.

Références

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Tong F, Billheimer J, Shechtman CF, et al. Decreased expression of ARV1 results in cholesterol retention in the endoplasmic reticulum and abnormal bile acid metabolism. J Biol Chem. 2010;285(44):33632-33641.
Palmer EE, Jarrett KE, Sachdev RK, et al. Neuronal deficiency of ARV1 causes an autosomal recessive epileptic encephalopathy. Hum Mol Genet. 2016;25(14):3042-3054.
Alazami AM, Patel N, Shamseldin HE, et al. Accelerating novel candidate gene discovery in neurogenetic disorders via whole-exome sequencing of prescreened multiplex consanguineous families. Cell Rep. 2015;10(2):148-161.
Davids M, Menezes M, Guo Y, et al. Homozygous splice-variants in human ARV1 cause GPI-anchor synthesis deficiency. Mol Genet Metab. 2020;130(1):49-57.
Nashabat M, Al Qahtani XS, Almakdob S, et al. The landscape of early infantile epileptic encephalopathy in a consanguineous population. Seizure. 2019;69:154-172.
Segel R, Aran A, Gulsuner S, et al. A defect in GPI synthesis as a suggested mechanism for the role of ARV1 in intellectual disability and seizures. Neurogenetics. 2020;21(4):259-267.
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Murakami Y, Nguyen TTM, Baratang N, et al. Mutations in PIGB cause an inherited GPI biosynthesis defect with an axonal neuropathy and metabolic abnormality in severe cases. Am J Hum Genet. 2019;105(2):384-394.
Kato M, Saitsu H, Murakami Y, et al. PIGA mutations cause early-onset epileptic encephalopathies and distinctive features. Neurology. 2014;82(18):1587-1596.
Tarailo-Graovac M, Sinclair G, Stockler-Ipsiroglu S, et al. The genotypic and phenotypic spectrum of PIGA deficiency. Orphanet J Rare Dis. 2015;10:23.
Okai H, Ikema R, Nakamura H, et al. Cold-sensitive phenotypes of a yeast null mutant of ARV1 support its role as a GPI flippase. FEBS Lett. 2020;594(15):2431-2439.
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Auteurs

Smrithi Salian (S)

CHU Sainte-Justine Research Center, University of Montreal, Montreal, Quebec, Canada.

Marcello Scala (M)

Department of Neurosciences, Rehabilitation, Ophthalmology, Genetics, Maternal and Child Health, University of Genoa, Genoa, Italy.
IRCCS Istituto Giannina Gaslini, Genoa, Italy.

Thi Tuyet Mai Nguyen (TTM)

CHU Sainte-Justine Research Center, University of Montreal, Montreal, Quebec, Canada.

Mariasavina Severino (M)

IRCCS Istituto Giannina Gaslini, Genoa, Italy.

Andrea Accogli (A)

Department of Neurosciences, Rehabilitation, Ophthalmology, Genetics, Maternal and Child Health, University of Genoa, Genoa, Italy.

Elisabetta Amadori (E)

Department of Neurosciences, Rehabilitation, Ophthalmology, Genetics, Maternal and Child Health, University of Genoa, Genoa, Italy.

Annalaura Torella (A)

Telethon Institute of Genetics and Medicine, Naples, Italy.

Michele Pinelli (M)

Department of Translational Medicine, Federico II University, Naples, Italy.

Beth Hudson (B)

Genedx, Gaithersburg, Maryland, USA.

Megan Boothe (M)

Department of Genetics, University of Alabama at Birmingham, Birmingham, Alabama, USA.

Anna Hurst (A)

Department of Genetics, University of Alabama at Birmingham, Birmingham, Alabama, USA.

Tawfeg Ben-Omran (T)

Department of Pediatrics, Clinical and Metabolic Genetics, Weill Cornell Medical College, Ar-Rayyan, Qatar.

Martin J Larsen (MJ)

Department of Clinical Genetics, Odense University Hospital, Odense, Denmark.

Christina R Fagerberg (CR)

Department of Clinical Genetics, Odense University Hospital, Odense, Denmark.

Lene Sperling (L)

Department of Gynecology and Obstetrics, Odense University Hospital, Odense, Denmark.

Ieva Miceikaite (I)

Department of Clinical Genetics, Odense University Hospital, Odense, Denmark.

Lucas Herissant (L)

Service de génétique, CHU Reims, Reims, France.

Martine Doco-Fenzy (M)

Service de génétique, CHU Reims, Reims, France.

Mélanie Jennesson (M)

Pediatric Department, AMH2 CHU Reims, Reims, France.

Vincenzo Nigro (V)

Telethon Institute of Genetics and Medicine, Naples, Italy.
Department of Precision Medicine, University of Campania "Luigi Vanvitelli", Naples, Italy.

Pasquale Striano (P)

Department of Neurosciences, Rehabilitation, Ophthalmology, Genetics, Maternal and Child Health, University of Genoa, Genoa, Italy.
IRCCS Istituto Giannina Gaslini, Genoa, Italy.

Carlo Minetti (C)

Department of Neurosciences, Rehabilitation, Ophthalmology, Genetics, Maternal and Child Health, University of Genoa, Genoa, Italy.
IRCCS Istituto Giannina Gaslini, Genoa, Italy.

Rani K Sachdev (RK)

Department of Women and Children's Health, UNSW, Sydney, Australia.
School of Women's and Children's Health, UNSW, Sydney, Australia.

Emma Elizabeth Palmer (EE)

Department of Women and Children's Health, UNSW, Sydney, Australia.
School of Women's and Children's Health, UNSW, Sydney, Australia.

Valeria Capra (V)

IRCCS Istituto Giannina Gaslini, Genoa, Italy.

Philippe M Campeau (PM)

CHU Sainte-Justine Research Center, University of Montreal, Montreal, Quebec, Canada.

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