A DM1 patient with CCG variant repeats: Reaching the diagnosis.


Journal

Neuromuscular disorders : NMD
ISSN: 1873-2364
Titre abrégé: Neuromuscul Disord
Pays: England
ID NLM: 9111470

Informations de publication

Date de publication:
03 2021
Historique:
received: 10 07 2020
revised: 12 12 2020
accepted: 14 12 2020
pubmed: 7 2 2021
medline: 16 11 2021
entrez: 6 2 2021
Statut: ppublish

Résumé

We report the case of a male patient presenting in his 50s with ptosis, facial and distal limb muscle weakness, clinical and electrical myotonia, and a prior history of cataract extraction. He had a dominant family history in keeping with a similar phenotype. Myotonic dystrophy type 1 was clinically suspected. Triplet-primed polymerase chain reaction in a diagnostic laboratory did not identify a typical CTG repeat expansion on two separate blood samples. However, subsequent genetic testing on a research basis identified a heterozygous repeat expansion containing CCG variant repeats. Our case highlights the point that variant repeats are not detectable on triplet-primed polymerase chain reaction and result in a milder phenotype of myotonic dystrophy. It is crucial to maintain a high clinical index of suspicion of this common neuromuscular condition.

Identifiants

pubmed: 33546847
pii: S0960-8966(20)30700-8
doi: 10.1016/j.nmd.2020.12.005
pii:
doi:

Substances chimiques

Myotonin-Protein Kinase EC 2.7.11.1

Types de publication

Case Reports

Langues

eng

Sous-ensembles de citation

IM

Pagination

232-238

Informations de copyright

Crown Copyright © 2020. Published by Elsevier B.V. All rights reserved.

Déclaration de conflit d'intérêts

Declaration of Competing Interest D.G.M. has been a scientific consultant and/or received honoraria or stock options from Biogen Idec, AMO Pharma, Charles River, Vertex Pharmaceuticals, Triplet Therapeutics, LoQus23, and Small Molecule RNA and has had research contracts with AMO Pharma and Vertex Pharmaceuticals.

Auteurs

Sarah A Cumming (SA)

Institute of Molecular Cell and Systems Biology, University of Glasgow, Davidson Building, Glasgow G12 8QQ, United Kingdom.

Agata Oliwa (A)

Undergraduate Medical School, University of Glasgow, Glasgow, United Kingdom.

Gillian Stevens (G)

West of Scotland Regional Genetics Service, Laboratory Medicine Building, Queen Elizabeth University Hospital, 1345 Govan Road, Glasgow G51 4TF, United Kingdom.

Bob Ballantyne (B)

West of Scotland Regional Genetics Service, Laboratory Medicine Building, Queen Elizabeth University Hospital, 1345 Govan Road, Glasgow G51 4TF, United Kingdom.

Cameron Mann (C)

Neurophysiology Department, Institute of Neurological Sciences, Queen Elizabeth University Hospital, 1345, Govan Road, Glasgow G51 4TF, United Kingdom.

Saif Razvi (S)

Neurology Department, Institute of Neurological Sciences, Queen Elizabeth University Hospital, 1345, Govan Road, Glasgow G51 4TF, United Kingdom.

Cheryl Longman (C)

West of Scotland Regional Genetics Service, Laboratory Medicine Building, Queen Elizabeth University Hospital, 1345 Govan Road, Glasgow G51 4TF, United Kingdom.

Darren G Monckton (DG)

Institute of Molecular Cell and Systems Biology, University of Glasgow, Davidson Building, Glasgow G12 8QQ, United Kingdom.

Maria Elena Farrugia (ME)

Neurology Department, Institute of Neurological Sciences, Queen Elizabeth University Hospital, 1345, Govan Road, Glasgow G51 4TF, United Kingdom. Electronic address: m.e.farrugia@doctors.org.uk.

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Classifications MeSH